Terms and Privacy Agreement - Tick Talk Ireland

TERMS & PRIVACY AGREEMENT

The intent of this platform is to foster and support a warm community empowered to share stories, experiences, and support for the many patients, survivors, family, and friends who have been impacted by Lyme disease. This community includes caregivers and family members, those who are still struggling with debilitating symptoms, and those who have found their way to health again, those who have had tremendous support to help them through their experience and others who have struggled valiantly against skepticism, distrust and disdain for their symptoms.

Because of the emotional nature of this illness and these experiences and the controversy and debate that surrounds this disease, we ask that you be mindful and respectful of others. If you take precautions, you can safely and confidently share your story and reflections, and you may even find affinity and insight from others who have had similar experiences, We ask that you consider the following guidelines:

Avoid using your full name (first and last names) or the full names of your children or family members unless you are sure you want people to know exactly who you are. Remember digital content is searchable and anything you publish can be saved and read for months to come.
Protect your privacy. Never give away contact information to someone you have met virtually unless you are CERTAIN of who they are and you are willing to have direct contact. Never give your password or credentials to others.
Consider the reputation of others mentioned in your story. Protect the identity of your caregivers, even if they were not all helpful. Tell the story but don’t use their names.
Photos. In this visual age, photos are how we tell our stories and they are powerful ways of communicating. But the photos you share don’t have to give away more than you wish. We do ask for a headshot to be included with your story. The images that bring your story to life need not have recognisable likenesses — you can show family members from behind, include scenic shots or close-in images to highlight apart of the story. We will not publish photos considered inappropriate in any way.
Please respect copyright. Think twice about including pictures, videos, quotes, or other words that do not belong to you.
Be generous. Assume the best and don’t be quick to judge or react to someone else’s commentary or well-intentioned responses. It can be hard to discern intent through written words and emotional or strong language may be the product of a very personal experience. Before assuming malice, be willing to allow for extenuating circumstances or misconstrued intent.
No self promotion. If currently fundraising for treatment please do not include this in the story. No links to external webpages like go-fund me will be accepted. This is to be fair to all members and to not dilute the overall message.

General Prohibitions

You agree not to do any of the following:

Use, display, mirror or frame the Site, or any individual element within the Site, Tick Talk Ireland’s name, any Tick Talk Ireland trademark, logo or other proprietary information, or the layout and design of any page or form contained on a page, without Tick Talk Ireland’s written consent;
Access, tamper with, or use non-public areas of the Site, Tick Talk Ireland’s computer systems, or the technical delivery systems of Tick Talk Ireland’s providers;
Attempt to probe, scan, or test the vulnerability of any Tick Talk Ireland system or network or breach any security or authentication measures;
Avoid, bypass, remove, deactivate, impair, descramble, or otherwise circumvent any technological measure implemented by Tick Talk Ireland or any of Tick Talk Ireland’s providers or any other third party (including another user) to protect the Site or Content;
Attempt to access or search the Site or Content or download Content from the Site through the use of any engine, software, tool, agent, device, or mechanism (including spiders, robots, crawlers, data mining tools or the like) other than the software and/or search agents provided by Tick Talk Ireland or other generally available third party web browsers;
Use any meta tags or other hidden text or metadata utilising a Tick Talk trademark, logo, URL, or product name without Tick Talk Ireland’s express written consent;
Use the Site or Content for any commercial purpose or the benefit of any third party or in any manner not permitted by these Terms;
Attempt to decipher, decompile, disassemble, or reverse engineer any of the software used to provide the Site or Content;
Interfere with, or attempt to interfere with, the access of any user, host, or network, including, without limitation, sending a virus, overloading, flooding, spamming, or mail-bombing the Site;
Collect or store any personally identifiable information from the Site from other users of the Site without their express permission;
Impersonate or misrepresent your affiliation with any person or entity;
Violate any applicable law or regulation; or
Encourage or enable any other individual to do any of the foregoing.

Although we’re not obligated to monitor access to or use of the Site or Content or to review or edit any Content, we have the right to do so for the purpose of operating the Site, to ensure compliance with these Terms, or to comply with applicable law or other legal requirements. We reserve the right, but are not obligated, to remove or disable access to any Content, at any time and without notice, including, but not limited to, if we, at our sole discretion, consider any Content to be objectionable or in violation of these Terms. We have the right to investigate violations of these Terms or conduct that affects the Site. We may also consult and cooperate with law enforcement authorities to prosecute users who violate the law.

User Submissions

We do not claim ownership of any information or material a user transmits, posts, or uploads to or through the Site by any means, including. All Submissions will be treated as non-confidential and non-proprietary, and may be disseminated or used by us for any purpose and in any way without any compensation.

By making a Submission to or through the Site, you automatically grant us an unrestricted, irrevocable, worldwide, royalty-free license to use, reproduce, display, publicly perform, transmit, and distribute such Submission, alone or as part of other works in any form, media, or technology whether now known or hereafter developed.

You warrant and represent that you shall not transmit, post or upload to or through the Site any Submission that is, in whole or in part, scandalous, inflammatory, discriminatory, defamatory, false, threatening, vulgar, obscene, pornographic, profane, abusive, harassing, invasive of another’s privacy, hateful or bashing, aimed at gender, race, colour, sexual orientation, national origin, religious views or disability, or otherwise unlawful, or that violates or infringes on the privacy, publicity, intellectual property, proprietary, or contractual rights of any third party.

You further warrant and represent that to the extent you transmit, post or upload to or through the Site any Submission that constitutes a review, a testimonial and/or an endorsement of a product and/or service, you will clearly and conspicuously disclose the material connections you share with the seller of the product and/or service, including disclosing the fact that you are being paid to promote or review the product and/or service or from any links within your Submission whenever that is the case, based your review, testimonial and/or endorsements on your own independent evaluation of the product and/or service, not pass along misleading or unsubstantiated advertiser claims, and otherwise comply with applicable laws.

We do not represent or warrant the truthfulness, accuracy or reliability of any content, information or material contained in any Submissions made to or through the Site by users or endorse any statements, representations or opinions expressed by users in their Submissions. Your reliance on content, information, material, statements, representations or opinions contained in any Submissions made to or through the Site by other users shall be at your own risk.

While we may moderate Submissions and reserve the right to refuse and/or remove any Submissions for any reason, we are not responsible for screening or monitoring Submissions made to or through the Site by users. If notified by a user of any Submissions made to the Site allegedly in violation of these Terms of Use, we may investigate the allegation and determine in good faith and our sole discretion whether to remove such Submission or any portion thereof. We shall have no liability or responsibility to users for performance or nonperformance of such activities.

We reserve the right not to post or to remove any information or material posted, uploaded, input or submitted to the Site for any reason, including, without limitation, any Submissions that, in our sole discretion, we deem to be in violation of these Terms of Use.

We obtain personal information from you in numerous ways including when you make a donation, engage in fundraising, fill out any online forms on our website, submit a case study to us, request awareness materials or other items on offer, volunteer with us, email us, phone members of our team or take part in any surveys we run. Please note that if you upload photos, videos, posts and comments on our Online Community on Facebook, the information can be read by anyone with access to the Community and used for purposes over which Tick Talk Ireland may not have control. Therefore, Tick Talk Ireland is not responsible for any information you submit to the Online Community on Facebook. Our admin team monitors adherence to our Community rules which can be found in the pinned post of our Online Community. These rules include the request that members do not share information outside of the Community but Community members post at their own risk.